September is Sickle Cell Awareness Month

By Office of Communications & Marketing | Sep 9, 2025

September is Sickle Cell Awareness Month. SUNY Downstate joins communities nationwide in elevating attention to a disease that affects more than 100,000 Americans, with an acute impact in Brooklyn. Sickle cell disease is inherited and causes flexible, round red blood cells to become hard and crescent-shaped. These fragile cells die early and can obstruct blood vessels, which can lead to severe pain, organ damage, infections, stroke, and other life-threatening complications. Without consistent care, life expectancy shortens.

In the United States, sickle cell disease occurs in 1 in 365 Black/African American births and 1 in 16,000 Hispanic American births. Because Brooklyn has among the highest rates in the nation, timely screening and regular care are not just important—they’re urgent.

At Downstate, our team delivers comprehensive, evidence-based care that helps patients prevent crises and stay well. This includes FDA-approved therapies that reduce sickling and pain; supportive care, such as transfusions, to manage symptoms and complications; referrals for curative options like stem cell transplant and gene therapy for eligible patients; prevention and monitoringwith antibiotics and ultrasound screenings; and genetic counseling and education for individuals and families, with an emphasis on early testing and newborn screening.

Awareness leads to action. Knowing your sickle cell trait status, keeping routine specialty appointments, and discussing the full range of current FDA-approved treatments with your care team are practical steps that save lives. Expectant parents can also confirm newborn screening plans and follow up on results to ensure early intervention.

To hear more from our clinical leaders, watch a brief message from Dr. Mohan Preet, Director of the Infusion Center, who shares essential guidance for patients and families. For up-to-date information on sickle cell disease and emerging treatments, visit the American Society of Hematology.